Around the world, every 30 minutes, a child is born who will develop a mitochondrial disease by age 10. While exact numbers of children and adults suffering from mitochondrial disease are hard to determine because so many people who suffer from mito are frequently misdiagnosed, yet we now know the disease is approaching the frequency of childhood cancers.
New research is suggesting that 1 in 250 people will have mitochondrial disease. Many are symptomatic but undiagnosed or misdiagnosed, at risk of developing the disease or passing it on to their children. Doctors can’t predict the progression of Mitochondrial disease or the outcome for patients, there are very few effective treatments and no cure.
The 23rd of September is World Stay In Bed Day, a day where people around the world are staying in bed to raise funds to find a cure for those who have no choice about being bed ridden.
My dear friend Chelsea lost her beautiful daughter, Stella to Mitochondrial Disease in December last year, I wrote about Chelsea and Stella many times last year but for those who haven’t read Chelsea’s story please take the time visit her blog Stella’s Galaxy, share it with friends and please, please consider donating for Stay in Bed Day or direct to the Australian Mitochondrial Disease Foundation
This year I won’t be staying in bed but I’ll be making sure to donate to a very worthy cause in memory of our little Stella.
For more information about Mitochondrial Disease, visit the Australian Mitochondrial Disease Foundation.
{ 1 comment }
Beautifully written , thanks Kyla for helping to spread the word Once again xxxxx
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